ABSTRACT
Background/Purpose: This presentation highlights the benefits and challenges of implementing speech therapy trainings utilizing a train-the-trainer model. Children born with CL+/-P need comprehensive care from a cleft team to ensure that they can meet their highest potential and engage in all aspects of life in their communities. However, in these areas it can be difficult to locate health professionals with the capacity to address cleft palate speech characteristics. As a result, many children speak with these characteristic speech patterns post-palate repair. Research has shown that in low- and middle-income countries (LMICs) a partner hospital model improves the quantity and quality of cleft care services (Purnell, McGrath, & Gosain, 2015). However, there are varying models as to how to structure and build these programs once a partner hospital is established. Limited research has been conducted focusing on the efficacy of speech therapy trainings intended to provide a sustainable impact on these communities. Methods/Description: This poster shares comprehensive data from a survey distributed to training attendees from the past 5 years. Trainings were organized by Smile Train and facilitated by local health professionals who went on to become future trainers. The survey was distributed in August 2020 and consisted of three sections: Personal & Demographic information, Global Impact & Outreach, and Speech Training Feedback. The survey elicited a group of respondents (n=55) who each attended one or more of 14 trainings over a five year span (2015-2020). Authors collected demographic data of respondents, measured respondents' self perception of competency in this area before and after speech therapy trainings, and gathered trainee feedback for future trainings. Results: Surveys were analyzed via SurveyMonkey platform. Researchers analyzed trainee's multiple choice selections, scaled scores, and open-ended responses. Results indicated that trainee confidence in treating those with speech conditions resulting from a CL +/-P significantly increased after the training (on average, trainee confidence was scored a 4/10 before training and improved to 9/10 after training). Further, 56% of trainees have now begun to train other health professionals in their communities. Constructive feedback included the need for continuing education after trainings concluded and the need to address the lack of resources/funding in home countries. Finally, trainees report difficulties in implementing tools acquired from the trainings as a result of the COVID-19 pandemic. Conclusions: Utilization of a train-the-trainer model for speech trainings can provide a lasting, sustainable impact for LIMCs based on respondent feedback. Continued survey distribution is imperative to continuously evaluate the efficacy of these trainings. Further discussion is also needed to determine how trainings can effectively provide tools and education within the constraints of the COVID-19 pandemic.
ABSTRACT
Background/Purpose: The physical effects of clefting can obscure the psychosocial aspects of the disease. With this in mind, the idea for a unique mental health booklet arose. 9 Reasons to Smile: Family Fun Activity Booklet was developed when Smile Train international programs suspended all cleft treatment for patients at the height of the COVID-19 pandemic. Patients could not receive cleft surgery and other nonsurgical treatments, such as nutritional support, orthodontic care, dental care, psychosocial care, and speech therapy, to ensure long-term, successful rehabilitation. Suspension of cleft treatment poses significant challenges for children and families. Recognizing these challenges, Smile Train developed this booklet to raise awareness for psychosocial health as it is not readily accessible or prioritized around the world. The booklet includes art projects on self-love, engaging games to help children explore their emotions, their relationships, and their self-confidence. Methods/Description: The booklet was developed with support from Fundaci'on Cl'inica Noel, a Smile Train Partner in Colombia. It was first launched in English, French, and Spanish during the World Health Organization Walk the Talk Virtual Event on May 17, 2020. A global launch for the booklet in 10 languages took place on June 17, 2020. To further increase awareness for psychosocial health, Smile Train hosted a live, virtual celebration of 9 Reasons to Smile on July 21st and Smile Train Brazil and Mexico participated in their own local celebrations. The event convened representatives from the global health and global cleft communities to discuss art, health, clefts, and the importance of maintaining self-esteem and positivity through adversity. Results: The booklet is now available in 15+ languages and is shared through WhatsApp messaging platforms worldwide. The global virtual celebration had over 4000 views on Facebook and YouTube, and its reach continues to grow. Smile Train has received thousands of photos and stories from families and partners sharing their experiences using the booklet and its tremendous impact on their lives. The overwhelming response confirms the demand for programs and resources that focus on cleft patients and their psychosocial health needs. Conclusions: There is a need for supporting psychosocial services in global cleft care which is particularly evident during the COVID-19 pandemic. Access to these services is not always prioritized in many countries around the world and the enthusiasm for the 9 Reasons to Smile booklet indicates the positive impact such resources have on mental health. Smile Train is committed to raising awareness on the importance of psychosocial health in global cleft care and will continue to support and scale initiatives for cleft patients and their families around the globe.